Cancer FAQ
NOTE: It is unclear if there is any continuing value to maintaining this FAQ. We are evolving to long lists of lists. If you have any suggestions or comments, please send them to Loren Buhle.

Loren Buhle
16-Nov-2000

Please keep in mind that mention of a resource on this list does not imply endorsement!

Good luck, God bless you, and KEEP FIGHTING. Informed, motivated patients live longer!

Copyright 1995-2000. E. Loren Buhle, Jr., Ph.D. This information may be reprinted as long as the date and maintainer are clearly stated and this is information is made freely available for dissemination.


Questions:
  1. Where can I find information about cancer on the Internet?
  2. What is the recipe for the "hot candy" to relieve mouth sores?

ANSWER 1.

*** TABLE OF CONTENTS ***

  1. Announcements
  2. NCI Cancer Rolodex
  3. CancerNet
  4. Gopher and WWW Resource List
  5. Online Mailing Lists (Listserves)
  6. NetNews (Usenet)
  7. Commercial Online Resources
  8. Non-Commercial Online Resources
  9. Online library catalogs (to help find books)
  10. Shareware Programs via FTP
  11. The Internet Health Science's Resources List
  12. The Better Information Group
  13. The BMT Newsletter
  14. The Powerlines & Cancer FAQ
  15. Free Drug Program
  16. The Texas Cancer Data Center
  17. LINCS

Announcements - November 1995

GrannyBarb's Leukemia Links - http://walden.mo.net/~lackritz/

Use of Prostate-Specific Antigen (PSA) in Monitoring Patients After Local Treatment for Prostate Cancer - http://www.Roxane.COM/Roxane/RPI/Newsletters/MDA/v6n4.html

Prostate Cancer: A Diagnostic Dilemma - http://www.Roxane.COM/Roxane/RPI/Newsletters/MDA/v10n3.html

Cancer And Natural Medicine: A Textbook of Basic Science and Clinical Research - http://www.teleport.com/~ormed/ The Caitlin Raymon International Registry - http://www.tiac.net/users/crir The Caitlin Raymond International Registry is a comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donor. The Registry accesses more than 1.3 million donors internationally (not including the donor panel of the National Marrow Donor Program).

Oncology Nursing Society - http://www.nauticom.net/www/onsmain/

National Alliance of Breast Cancer Organization - http://www.nabco.org/

MedTrial Homepage - http://www.amg.gda.pl/MEDIC/MedTrial/MedTrial.html

SouthWest Oncology Group - http://www.oo.saci.org/

Nancy Oster's Hotwired Review of Cancer Resources http://www.silcom.com/~noster/Healthlinks.html

Hodgkin's Lymphoma Listerv
The purpose of this list is to exchange information, stories, hints, tidbits and anything you can think of between fellow *Hodgkins Disease* patients.

Please don't be shy. Any and all questions/answers posted to the listserv address of Hodgkins@solar.org will be echoed to all members of this list. It will be extremely helpful to share any of your insights with others having this disease.

Have questions? Ask! Tell us about your experiences, your doctor, how you are coping (or not), there are plenty of others who have had the same/similar experiences and they can HELP.

To Sign up, send email to listserv@solar.org
In the message body put: subscribe hodgkins
To unsubscribe, put: unsubscribe hodgkins
DO NOT put your username in the message body.

You can retrieve the archived messages to help you get up to speed by sending e-mail to the listserv@solar.org address *once you subscribe to the list*. Put the words 'archive hodgkins' in the message body. Listserv will reply by sending out the archived messages to you. This list is set up so that only subscribers can request messages. Please note that we presently have an archive storage of 500 messages. You may receive up to this quantity of messages when you make your request. If a request comes in from a non-subscriber, they will not be sent the archive.

Breast Cancer Cookbook - http://www.silcom.com/~noster/bcrecs.html

Association for the Cure of Cancer of the Prostate - http://www.secapl.com/prostate/capcure.html

Prostate Pointers - http://rattler.cameron.edu/prostate.html

Will the Junk Science Stand Up? - http://starfire.trimaris.com/~ussw/studies/harvbrig.html
An analysis of the Mayo Clinic Women's Study and Harvard/Brigham Nurses Study in Relation to The Silicone Gel Breast Implant Controversy

Non-Hodgkin's Lymphoma - http://www.westvirginia.com/wv002/nhlhome.htm

American Cancer Society - http://www.cancer.org/

EduCare, Inc. - Breast Health and Breast Cancer Network - http://www.cancerhelp.com/ed/

Mike's Lymphoma Home Page - http://users.aol.com/kittyba/lymphoma.html

Breast Cancer Awareness Campaign in the UK - http://doric.bart.ucl.ac.uk/web/BreastCancer/aware.html

The National Marrow Donor Program - http://www.marrow.org/

NCI's ICI Page - http://pdqsearch@icicc.nci.nih.gov/

Gray Laboratory - Radiobiology - http://www.graylab.ac.uk/ [STATUS?]

National Breast Cancer Centre Home Page (Australia) - http://www.nbcc.org.au/

George Allen's Colon Cancer Information - http://www.medinfo.org/colon_cancer

Basic and Clinical Aspects of Prostate Cancer - http://www.secapl.com/prostate/top.html

Coalition of Silicone Survivors - http://bcn.boulder.co.us/health/silicone/sshead.html

Implant Survivors - http://www.jaxnet.com/~angelimp/

Update of Implant Survivors - http://www.seamless.com/talf/txt/dow.html

United Silicone Survivors of the World - http://starfire.trimaris.com/~ussw/

University of Arizona Cancer Center - http://www.azcc.arizona.edu/

CenterWatch Clinical Trials Listing Service - http://www.centerwatch.com/

Clinical Trials and Noteworthy Treatments for Brain Tumors - http://www.virtualtrials.com

Algy's Herb Page - Medicinal - http://frank.mtsu.edu/~sward/herb/medicinal.html

World Congress on Cancer Organizations - http://www_uicc.who.ch/

Death and Dying - http://www.newciv.org/worldtrans/BOV/death.html

The Natural Death Handbook - on the 'Net - http://www.newciv.org/worldtrans/BOV/natdeath/ndhbook.html

"Before and After" - http://www.newciv.org/worldtrans/BOV/befaft/contents.html

Funerals: A Consumer Guide - http://www.webcom.com/~lewrose/brochures/funerals.html Facts for Consumers from the Federal Trade Commission


NCI Cancer Rolodex

Cancer Rolodex
This directory targets cancer researchers (sponsored by the US National Cancer Institute) to contain more than 100 resources including genomic maps, drug molecule databases, tissue banks, clinical trials, stats on cancer incidence, and much more. Each entry includes a brief description, a contact person and a web link.


CancerNet

CancerNet is by far the most comprehensive and up-to-date source of information about cancer. It is maintained by the (United States) National Cancer Institute. Included in this database is a well-maintained list of other information sources, such as MEDLINE, so for most people this is THE place to start. Sources of information that are listed in CancerNet are (usually) not repeated in this FAQ.

Send e-mail to:

CancerNet@icicc.nci.nih.gov
cancernet@icicb.nci.nih.gov OBSELETE

with no subject, and the word "help" as the message. They will send you a message explaining how to use the system. They can also be reached by calling the voice line: 1-800-4-CANCER. For those without email access, they can send out brochures and FAX'es.

CancerNet is available through voice phone, traditional mail, FAX, e-mail, gopher, ftp, and World Wide Web (WWW). Contact CancerNet via e-mail or voice phone for current access instructions.


Gopher and WWW

To get the most current Gopher/World Wide Web addresses of interest, it's best to just get on and start searching. To help you get started, here's a list of servers that others have found useful. The list may not be up to date, but it should provide some good starting points.

If you don't know what Gopher and WWW are, look for some FAQ's in the new users newsgroups or the gopher/WWW newsgroups, or contact your local help desk or system administrator. A WWW resource address is identified by having "http://" in the beginning of the address. A gopher server has a "gopher://" at the beginning of the address.

Disease Specific Servers

Breast Cancer Servers

Lymphomas, etc.

Multiple Myeloma Servers

Gynecologic Oncology

Melanoma

Brain Tumors

Leukemias and Lymphomas

Colon Cancer

Emotional Support, Bereavement

General Cancer & Cancer-Related Servers

Government Servers

Educational Institution Servers

Dedicated Cancer Resources

Other Resources


Online Mailing Lists (Listserves)

Note: http://www.medinfo.org/lists Searchable Cancer Listserv Archives "Information gathering is a fundamental element of the fight against cancer. From this location you will have access to the centralized archives of all the cancer listservs where the information flows uncensored . Our user friendly interface will allow you to do structured searches across all those archives or to refine your searches to Time and Disease Specific delimiters."

Bone Marrow Transplant List
To subscribe: send mail to bmt-talk-request@ai.mit.edu with the word "subscribe" (no quotes) in the body of the message. Once you subscribe, you will be able to mail messages to bmt-talk@ai.mit.edu.

The online archive of BMT-Talk messages is on the World Wide Web at:
URL: http://www.ai.mit.edu/people/laurel/Bmt-talk/bmt-talk.html

Brain Tumor Discussion Mailing List:
To subscribe: Send a message to: LISTSERV@MITVMA.MIT.EDU Leave the subject line blank, and set the first message line to:
subscribe BRAINTMR your_first_name your_last_name

Breast Cancer Discussion Mailing List:
To subscribe: Send a message to: listserv@morgan.ucs.mun.ca Leave the subject line blank, and set the first message line to:
subscribe BREAST-CANCER <Your Name>

"At the present time, there are about 600 people from around the world subscribed to the BREAST-CANCER List. This translates to approximately 20-50 postings daily. In order to allow efficient searching of digests and archives (see below), as well as to give recipients some idea as to the issues you wish to address in your posting, we suggest that the "Subject" line of all submissions contain at least one of the following abbreviations that might best describe its contents:

ALT- alternative, or unconventional cancer therapies
ANCMT- events, announcements
BMT- aggressive chemotherapy with bone marrow transplant or stem cell rescue
CHEM- chemotherapy, antineoplastics
HUMR- humour
MAMO- imaging, mammography, radiology
MENO- menopause, hot flashes
METS- metastases, advanced breast cancer
PATH- pathology, biopsies, staging
RECN- reconstruction, prostheses, body image
RECR- recurrence
INT- issues of intimacy, relationships and sex, family members
SUP- messages of support, words of encouragement
TAMX- tamoxifen and related drugs
MISC- miscellaneous (i.e., anything we might have missed)
In addition, due to mail volumes, email addresses which repeatedly bounce List postings, will generally find themselves unsubscribed relatively quickly. Please do not take offense. You have very likely not *done* anything for which this might be retribution. If you find yourself unceremoniously signed off without your knowledge, check that your mailbox is not full, and that your system is not down. If all is well, simply resubscribe.

By sending a "SET BREAST-CANCER DIGEST" command to LISTSERV@morgan.ucs.mun.ca, you can change your mechanism of receipt of postings- from individual, full-header messages received as they are sent to the LIst by subscribers, to a single (or twice) daily collection or "digest" of messages with condensed headers. This is particularly useful if you have limited mailbox space, pay per message received, or simply like to download mailings and search according to your particular interests. To revert to default settings (i.e., to receive individual postings), send a "SET BREAST-CANCER NODIGEST" message to LISTSERV@morgan.

You may leave the list at any time by sending a "SIGNOFF BREAST- CANCER" command to LISTSERV@morgan.ucs.mun.ca. PLEASE NOTE: LISTSERV requires a confirmation of your request to signoff. Please do not overlook this, because without it your request will be ignored."

Access for the Archives of the Breast-Cancer Listserve

Go to:  http://www.nysernet.org/bcic/
Select link entitled:  Cancer Listservs, Gophers and Other Online Information
Select directory:  BREAST-CANCER (listserv Description and Archive)
Select directory:  BREAST-CANCER Archive
Select year (1994 or 1995)
Select month
Select date
Select message from titles

To keyword search, select:  "Search Archived postings by keyword"
which is the first item on the BREAST-Cancer Archive page.
CANCER-L
A very intensive general support group highly recommended! To subscribe: Send a message to: LISTSERV@WVNVM.WVNET.EDU Leave the subject line blank, and set the first message line to:
SUBSCRIBE CANCER-L <Your Name>

Ovarian cancer mailing List:

Hodgkin's Lymphoma Listerv
The purpose of this list is to exchange information, stories, hints, tidbits and anything you can think of between fellow *Hodgkins Disease* patients.

Please don't be shy. Any and all questions/answers posted to the listserv address of Hodgkins@solar.org will be echoed to all members of this list. It will be extremely helpful to share any of your insights with others having this disease.

Have questions? Ask! Tell us about your experiences, your doctor, how you are coping (or not), there are plenty of others who have had the same/similar experiences and they can HELP.

To Sign up, send email to listserv@solar.org
In the message body put: subscribe hodgkins
To unsubscribe, put: unsubscribe hodgkins
DO NOT put your username in the message body.

You can retrieve the archived messages to help you get up to speed by sending e-mail to the listserv@solar.org address *once you subscribe to the list*. Put the words 'archive hodgkins' in the message body. Listserv will reply by sending out the archived messages to you. This list is set up so that only subscribers can request messages. Please note that we presently have an archive storage of 500 messages. You may receive up to this quantity of messages when you make your request. If a request comes in from a non-subscriber, they will not be sent the archive.

The clinical trials mailing list
For those interested in the design, management and execution of clinical trials. To subscribe, send an EMAIL message to: majordomo@world.std.com
The body of the text should read (exactly as written):

subscribe Clinical_Trials

Clinical-Trial-Finder
The purpose of the Clinical-Trial-Finder listserv is to help those seeking clinical trials for any problem to communicate with hospitals and other medical providers offering the same. The list will be moderated. Medical facilities are urged to subscribe to the list and post detailed descriptions of trials they are conducting or intend to conduct. The more details given the better. Also, the trial's approval by an appropriate authority should be shown.

Patients or caretakers should post as much information as they are comfortable describing as to medical problems for which they are seeking a medical trial.

Discussion in general of trials and medical problems should not be posted to the list. The idea is to keep the bandwidth at a minimum so that all interested will keep watch for postings without feeling overburdened by too much mail.

To subscribe send to listserv@garcia.com the message

subscribe ctf <full name> omit the < and > symbols

Transplant mailing list:
To subscribe to TRANSPLNT, send a mesage to LISTSERV@WUVMD.WUSTL.EDU with the following in the message:

SUBSCRIBE TRANSPLNT <your name>

To send mail to the TRANSPLNT list, send messages to: TRNSPLNT%WUVMD.bitnet@vm42.cso.uiuc.edu

HUM-MOLGEN mailing list:
In conjunction with the related World Wide Web site:

http://www.informatik.uni-rostock.de/HUM-MOLGEN/
(via NETSCAPE; capitals in the adress are important)

The conventional E-mail service and the WWW-site are set up as one interactive unit: The E-mail service will further focus on condensed, summarized active information and communication of your key-interest. The WWW-site will focus on much more extensive passive information and communication, which can also be selected by choice. In general, subscribers to HUM-MOLGEN will have the advantage when it comes to pre-information, new features, etc.

Both list- and WWW communication on HUM-MOLGEN are equally divided in TOPICS, such as you are used to (NEWS, CALLs, ANNOuncements, COMPuters science in genetics and Internet highlights, molecular DIAGnostics/clinical research, LITErature,BIOTechnology/molecular biology,ETHIcal/social)

Communication on HUM-MOLGEN remains entirely FREE and very FAST. Subscribers can easily ANNOunce meetings, events or positions, CALL for collaboration, and look for, send or receive all sorts of summarized information of HUM-MOLGEN interest. From the literature, previews of journals, articles of hard-copies can be sent or received on HUM-MOLGEN. COMP specializes in communication in Internet highlights and computational genetics. The DIAG section is especially suited for communication between clinicians and biologists. BIOT will a.o. provide communication about new products and information about new techniques as well as commercialisation of Human Genome research.

The NEW HUM-MOLGEN WWW site is:

The WWW-site is still under construction; new features and new information will be added in the next few weeks. We are looking for your critical comments and support!

subscribe (free) to HUM-MOLGEN mailing list, send message

subscribe HUM-MOLGEN first_name last_name (sci)
to
listserv@nic.surfnet.nl
Frank S. Zollmann       Arthur Bergen
Zollmann.1@osu.edu      Bergen@amc.uva.nl
  • Hem-Onc Listserv - Leukemias, Myelomas, Lymphomas....
    How to SUBSCRIBE to the Hem-Onc list:
    
    1)  Send electronic mail to this e-mail address:
            Listserv@ sjuvm.stjohns.edu
    2)  Leave the Subject line blank (or type 1 character if your software 
        requires something there)
    3) Place the following message in the body of the mail:
            subscribe hem-onc your-first-name your-last-name
    
  • Prostate Cancer Listserv
    To SUBSCRIBE to the Prostate list:
     
    1) Send electronic mail to this email address: 
            Listserv@sjuvm.stjohns.edu 
    2)  Leave the Subject line blank or enter a single character if your    
    email program requires something there.   
    3) Place the following message in the body of the mail: 
           subscribe Prostate First-name Last-name 
    
    For those who do have WWW capabilities, it is now possible to search
    the archives of the Prostate Problems Mailing List for specific
    questions, answers, people, topics, etc.
    
    The search system is located at
    
            http://www.medinfo.org/lists/cancer/pc_search_sl.html
    
    
    Medicine OnLine Newsgroups
    1. Mol-cancer-prof
      Healthcare Professional discussion group - Chemotherapy, Drug Info

      This forum requires registration and is for health care professionals. Every registered member is able to view the archives of previous messages and post questions, answers, files, and information into the discussion group without prior review. All activity in the group is monitored by Wellcome Oncology Drug Information as well as the facilitators.

      To subscribe to mol-cancer-prof, send the following in the body (not the subject line) of an email message to "Majordomo@lists.kbt.com":

      subscribe mol-cancer-prof

    2. Consumer discussion group - drug information

      This discussion group is open to anyone interested cancer treatment discussion. Every member is able to view the archives of previous messages and post questions, answers, files, and information into the discussion group without prior review.

      To subscribe to mol-cancer, send the following in the body (not the subject line) of an email message to "Majordomo@lists.kbt.com":

      subscribe mol-cancer
    Radiation Oncology Listserve:
    To subscribe to the radiation oncology listserve, send a message to: biosci-server@net.bio.net with the following message:
    subscribe radoncjc


    Net News

    In case this FAQ was forewarded to you by e-mail, you might Want to know that it is posted every week or so on the news groups "sci.med", and "alt.support.cancer". These are both good newsgroups for cancer information and support. The FAQ is also posted on "news.answers", a group for FAQ's.
    alt.support.cancer
    alt.support.cancer.prostate
    alt.support.prostatitis
    sci.med.disease.cancer
    sci.med.prostate.cancer
    sci.med.prostate.prostatitis
    sci.med.prostate.bph
    alt.health.policy.drug-approval
    alt.grief


    Commercial online services

    Many online services have forums for people to discuss cancer.

    CompuServe

    Cancer Forum - GO CANCER
    Consumer Reports Drug Database - GO DRUGS
    Health Database Plus - GO HLTDB
    Knowledge Index - GO KI
    MedSig Forum - GO MEDSIG
    NORD Services/Rare Disease Database - GO NORD
    Paperchase/MEDLINE - GO PAPERCHASE
    Physician's Data Query - GO PDQ

    Prodigy

    Medical Support Board
    TOPICS:
    CANCER
    OTHER (breast implants)

    America Online (AOL)

    (1-800-827-6364 voice)

    Cancer information has recently been reorganized on America Online with many new resources. They are:

    American Cancer Society Online (Keyword: ACS) - ACS hosts the new cancer area including databases of cancer information, interactive bulletin boards on 48 different cancer topics, and info on ACS & its activities.

    Scientific American Cancer Journal (Keyword: Cancer J SciAm) - check out the latest issue or search the database for past information.

    Online Support Groups - the number of groups has expanded. They are:
    • "Living with Cancer", Sundays 7 PM EST
    • "Cancer Survivors", Mondays 10 PM EST
    • "Loved ones of Cancer Survivors", Tuesdays 7PM EST
    Cancer patients, survivors, and loved ones are encouraged to attend. To get to the forum room, go to the ACS area (Keyword: ACS or keyword: CANCER) and select the Health and Medical Chat icon.

    Right now, you may use keyword: Avon to get to the Avon Breast Cancer Awareness Crusade in the Women's Day online forum.

    Thank you.
    Mike Barela, cofacilitator, "Cancer Survivors" online chat group

    At this time, AOL's WWW browser is available in beta version. Subscribers should use keyword "aol preview" and download the software.

    The NYU BBS for Brain Tumor Support and Research

    The head of Neurosurgery at NYU set up a commercial bbs system for brain tumor sypport and research. It is called: Brain tumor on-line. For information, call voice: 800-785-3312. It is pretty new, and not many people are on it yet, but there are a few doctors from NYU and the Mayo clinic - so it is a good source of info if you have a brain tumor.

    Other Online Services

    At the time this FAQ was updated, no one has commented on the quality of the cancer forums on other online services, but such comments would be welcome.

    To Contact A Commercial Online Service Provider:

    To start an account, contact the service of your choice. Each service can be contacted by voice through an 800 number. Call the 800 directory service (voice) at 800-555-1212 for the 800 number of the service you would like to try. Most services offer free or reduced-cost service for the first month of use. You might want to check recent computer-related magazines for special offers and coupons.


    Non-Commercial online services

    The FDA BBS

    For information on specific drugs, you might try the FDA BBS (U. S. Food and Drug Administration's Bulletin Board System). Using the telnet facility, telnet to "fdabbs.fda.gov", and login as "bbs".

    Technical Support is available for the FDA BBS System from 7:00 A.M. to 7:00 P.M. EST Monday through Friday. For support, contact the Parklawn Computer Center (PCC) at (301)443-7318. If you are looking for a specific report or article, contact the FDA Press Office at (301)443-3285.

    MED HELP INTERNATIONAL

    MED HELP INTERNATIONAL
    6300 North Wickham Road
    Suite 130, Box 188
    Melbourne, FL 32940-2029
    Voice: (407) 253-9048
    Fax: (407) 253-1819
    E-mail: staff@mhli.netusa.net
    BBS: (516) 423-0472

    Med Help International is a non profit organization which provides medical information written in non-technical terminology in order to support patients and their families who have been struck by the tragedy of serious illnesses.

    We are comprised of an all-volunteer staff of physicians and other health care professionals who are electronically connected.

    Med Help has made available to the public our computerized system whereby people may obtain information that is on the system at no charge.

    The system may be accessed via Internet (ftp, telnet or http) to:

    via WWW: http://medhlp.netusa.net/
    telnet medhlp.netusa.net
    ftp medhlp.netusa.net
    Or via dial-up (modem) to: (516) 423-0472 (N81- ANSI)

    The National Kidney Cancer Foundation BBS

    BBS Number: 800-280-2032

    The Florida Coalition for Cancer Survivorship BBS

    Date: Sun, 18 Sep 1994 11:13:22 EST
    From: "Drew H. Wolfe 813-253-7233"

    The Florida Coalition for Cancer Survivorship BBS, FCCS BBS, is a new BBS devoted to the needs and concerns of cancer survivors, their family members, and oncology health care professionals. Highlights of the FCCS BBS include:

    NCI's PDQ and CancerLit, hundreds of other cancer-related files and shareware, forums devoted to many different areas of cancer (disease specific, cancer support and support groups, message bases for oncology health care professionals), a database where you can post or read cancer stories, a database of tumor images, . . .

    You can access the FCCS BBS at the following toll free number: (800) 816-2744. Shortly, the FCCS BBS will connected to FidoNet and Internet. For more information contact Drew H. Wolfe, wolfed1@mail.firn.edu.

    FidoNet

    Formerly known as the Cancer-Leukemia Echo on Fido, 'Survivors' is on the Fido backbone and is available to any BBS that receives any FIDO echos. Check with your sysop about getting it. It is no longer just for Cancer or Leukemia patients. It was started by a couple whose daughter was diagnosed and treated for Leukemia. They found this method of getting and exchanging information helpful. The echo now handles survivor topics of a wide range. Cancer, Leukemia, Rape, physical and mental problems, and much more.


    Online library catalogs (to help find books)

    There are many good (and some awful) books about cancer and cancer-related issues. You local library may have its catalog online, especially if it's a University-related library.

    TIP: If a book you are reading makes you feel upset, for any reason, PUT IT DOWN. Reading tastes are a very individual matter. Never feel obliged to read a book just because a well-meaning friend has suggested or given it to you...or because it's a bestseller. It's YOUR life.
    (This tip is courtesy of: Ceil Sinnex)

    Shareware Programs via FTP

    From: hoang@Xenon.Stanford.EDU (My Khanh Hoang)
    Date: 17 May 1994 08:02:51 GMT

    The following ftp site: ftp.cica.indiana.edu has several shareware programs that may be helpful. One particular relevant program is Reduce Cancer Risk in pub/pc/win3/misc.

    The Internet Health Science's Resources List

    An update of my BITNET/Internet Health Science Resources List (03-93) is now available via ftp from FTP2.CC.UKANS.EDU.

    This document is an attempt to create a comprehensive list of health science resources available on the wide area networks. The list includes Listserv groups, Usenet groups, Freenets, Data Archives, Electronic Publications & Health Science oriented databases. This update also includes expanded gopher and WWW sites with many URL addresses, pointers to health related documents, and a large E-Journal section, along with several new databases and libraries. I hope you'll find this document useful for your Internet travels.

    Lee Hancock
    Internet - LE07144@UKANVM.CC.UKANS.EDU
    Owner & Editor: Internet/BitNet Health Science Resources List
    Owner CPRI-L (Listserv@ukanaix.cc.ukans.edu) Computerized Patient Records HMATRIX-L (Listserv@ukanaix.cc.ukans.edu) Online Health Resources

    The Better Information Group

    (While not an online source, the Better Information Group is included here for those interested in Breast Cancer. The information was received from webl@aol.com in July 1994.)

    Better Information Group publishes information guides. One of them is a basic understanding of Breast Cancer and treatments, etc. Their guides are $2.00 each. For other guides they have a toll free number giving details 1-800-814-4139. Their mailing address is:

    Better Information Group
    8815 N. 12th Place, Station T
    Phx, AZ 85020

    The BMT Newsletter

    From: flatau@cli.com (Arthur D. Flatau)

    The BMT Newsletters are on-line. Also on-line is the book: "Bone Transplants: A Book of Basics for Patients" and all the issues the BMT Newsletter.

    The book and the newsletters since January, 1994 are available on New State Breast Cancer Information Clearinghouse (BCIC) gopher These do not have any pictures.P gopher to nysernet.org or if you use a world-wide web brower (e.g. Mosaic) the URL is http://www.nysernet.org/

    Look under "Special Collections: Breast Cancer Information Clearinghouse" then "Sources of Medical Information and Support" and then "BMT Newsletter".

    The book and all the newsletters up to the November, 1994 issue (issues 13 to 26), with pictures on OncoLink, accessible via the World Wide Web at: http://cancer.med.upenn.edu/chemo/bmt and on OncoLink's gopher under "Medical Oncology/", submenu of "Bone Marrow Transplant Information (Patient)" or "Bone Marrow Transplant Newsletters/"

    In my opinion the BMT Newsletter is the best single source of information for patients considering undergoing a bone marrow transplant.

    The Powerlines & Cancer FAQ

    (i.e. do powerlines cause cancer?)

    From: jmoulder@its.mcw.edu (John Moulder)
    Date: 6 Jul 1994 19:41:57 GMT

    FAQs on Power-Frequency Fields and Cancer

    The primary anonymous FTP archive is: cdmas.crc.mcw.edu/pub/powerlines_and_cancer This archive contains both the posted 6-part version and a complete 1-part version.

    The FAQ sheet will be archived, after varying intervals, in the following places:

    Anonymous FTP: "rtfm.mit.edu"
    Directory: /pub/usenet-by-group/news.answers/powerlines-cancer-FAQ
    Files: part1, part2,... part6

    E-mail server: mail-server@rtfm.mit.edu
    -To get the current FAQ you would send the following message
    send /pub/usenet-by-group/news.answers/powerlines-cancer-FAQ/part1
    . . .
    send /pub/usenet-by-group/news.answers/powerlines-cancer-FAQ/part6

    On GEnie in the library of the Space and Science Roundtable (M460;3). The file is called EMF-FAQ.ZIP.

    On World Wide Web at: http://www.cis.ohio-state.edu/hypertext/faq/usenet/powerlines-cancer-FAQ/top.html

    In addition, there is also: EMF-Link(c) at http://infoventures.microserve.com/, a multimedia resource produced by the EMF Clearinghouse, a project of Information Ventures, Inc. EMF-Link provides substantive information on biological and health effects of electric and magnetic fields (EMFs) from common sources such as power lines, electrical wiring, appliances, medical equipment, communications facilities, cellular phones, and computers.

    Free Drug Program

    From: wilds@netcom.com (William D. Sterling)
    Date: Thu, 28 Jul 1994 17:34:49 GMT

    If you are financially distressed by the high cost of your cancer medication you can try to obtain free medication under a program operated by the United States Senate, Department of Aging. Majority Phone 202-224-5364 Minority phone 202-224-1467 At least 31 Drug companies will give 3 month supplies of drugs under the "indigent drug program" when requested on a form that your doctor can fill out. Call the above numbers for a list of the companies, drugs and contact phone numbers. The same list can be found via gopher at cancer.med.upenn.edu under the menu selection indigent drugs.

    The Texas Cancer Data Center

    From: flatau@cli.com (Arthur D. Flatau)
    Date: 30 Jun 1994 15:36:15 -0500

    Via Internet: telnet txcancer.mda.uth.tmc.edu

    Via modem: dial 800-788-9293 (in Houston or outside Texas 713-794-5858)
    Modem settings: No parity, 8 data bits, 1 stop bit, Full Duplex
    You need to have VT100 emulation.

    E-mail can be sent to message@txcancer.mda.uth.tmc.edu. "users are encouraged to send suggestions, comments or questions about the system or data provided."

    LINCS

    LINCS is a FREE public service that provides a searchable on-line human services resource directory Internet mail and usenet is available.

    LINCS-BBS -- 408/727-7227 Settings N81, to 14,400 baud, 3 lines.P

    FTP site: ftp.netcom.com         Our directory, called phpsetup.exe
       login: anonymous              is available from this site and our
       passw: your email address     WWW page.  It is searchable and you
              cd pub/LINCS           may feel free to share this program
                                     with others.  We welcome your feedback
                                     and comments.  EMAIL TO: sysop@php.com
                                     The directory is updated regularly.
    
    WWW: http://www.portal.com/~cbntmkr/php.html
    Real World: 3041 Olcott Street, Santa Clara, CA 95054-3222
    408/727-5775 FAX: 408/727-0181


    ANSWER 2

    One is for a taffy, the other for another sort of candy. I've not made them yet.

    Comments on the candy...

    Recipe 1: From Joy of Cooking, 1974, p540.
    Heavy pan, big enough to account for foaming.

    2 cups brown sugar
    1/4 cup molasses
    1/2 cup butter
    2 tbs water
    2 tbs vinegar
    1/2 tsp cayenne pepper (in this case, it was Durkee brand).
    Stir all ingredients except pepper together over low heat until sugar dissolved. Boil gently, stirring frequently, until candy is at hard crack stage: 300 degrees. Add pepper at the end of the boiling. Drop candy from teaspoon onto buttered slab or foil to form patties.

    Easy? There are candy tricks: Never double recipes, use a large enough pan, and apparently candy thermometers are fairly inexpensive and well worth the price. Above 200 degrees, the temp really takes off, and has to be watched carefully.

    Stages of candy:

    So, without a candy thermometer, you can approximate temperatures.


    Recipe 2: Betty Crocker, p164 (no other data)
    1 cup sugar
    3/4 cup light corn syrup
    2/3 cup water
    1 tbs cornstarch
    2 tbs butter or marg
    1 tsp salt
    2 tsp vanilla
    1/2 tsp cayenne pepper
    8x8x2 buttered pan
    In 2 qt saucepan, add sugar, corn syrup, water, cornstarch, butter and salt. Over medium heat, stirring constantly till hard ball stage (256F). Remove from heat, stir in vanilla and pepper. When cool enough to handle, butter hands and pull until satiny and stiff. Pull into long strips, cut into 1" pieces, and wrap with wax paper. (I don't know what the buttered pan is for.)


    Comments Author: Lucie Bergmann Shuster (cys@netcom.com)
    I must take issue with the recipe for the cayenne candy. I presume it is for chemo mouth sores, and GI tract problems. The quantity of cayenne is far to low for the volume to be effective. I am inclined to recommend 1/4 cup of cayenne, or certainly 2 tablespoons worth per recipe. In both cases it is imperative that the pepper be added before the candy hardens up or while the conncoction is in the cooling state.

    My source of info is Michael Tierra, "The Way of Herbs". This is what he says - "Taken as a daily tonic, one-quarter teaspoon three times daily,..." - this is straight pepper. The key concern is that the pepper gets hotter when heated.

    I'd opt for recipe number two and butter hands with pepper. Adding 1/8 of a teaspoon per taffy candy. That should do the trick, providing the patient isn't troubled by benign gall stones.


    (end of the Cancer FAQ)