The Brain Tumor Foundation of Canada,
111 Waterloo St., Suite 600,
London, Ontario
N6B 2M4
Telephone: (519)-642-7755
FAX: (519)-642-7192
The Brain Tumor Foundation of Canada was cofounded in 1982 by
Dr.Rolando Del Maestro, a neurosurgeon and Steven Northey, when the
Northey's eight year old daughter Kelly died of a brain tumor. Through
the efforts of many dedicated individuals, it has evolved into an
effective nonprofit charitable organization.
Vision Statement
To find a cure for brain tumors and to improve the quality of life
of those affected.
Mission Statement
The Mission statement of the Brain Tumor Foundation of Canada is
to fund research, provide patient and family support services and
educate the public.
Kelly Northey Memorial Library
The Kelly Northey Memorial Library provides books and educational
material to patients, their families and physicians. This library is
located on the second floor of the Health Services Building, directly
across from Victoria Hospital, South Street Campus, London, Ontario,
Canada. Visiting the library may be arranged by contacting the Brain
Tumor Foundation of Canada.
Research
The Foundation funds brain tumor research projects, meetings, as
well as laboratory and occasionally hospital equipment. Funds have been
allocated to researchers across Canada including those at McGill
University, the University of Toronto, Queen's University and the
University of Western Ontario. Funds have been allocated to researchers
at research institutes such as the John P. Robarts Institute in London,
Ontario.
Speakers and participants of various educational conferences related
to the subject of brain tumors are sponsored.
The Michael Bell Memorial Lectureship is a yearly lecture funded by
the Foundation. An individual with special expertise in the area of
cancer treatment or patient care is invited to London, Ontario, Canada.
The Brain Tumor Foundation of Canada was instrumental in helping to
start up the Brain Tumor Tissue Bank which is located at Victoria
Hospital in London, Ontario.
Education
The Foundation hopes to promote public awareness of brain tumors
and to encourage early detection through the distribution of
educational materials. A "Brain Tumors Strike At Any Age" pamphlet has
been distributed to many school boards in Ontario. This is available to
other groups who wish to increase public awareness and promote early
detection of brain tumors. An educational package for health care
professionals is being developed as well as an education video.
Support
The philosophy of the Foundation is that the more informed people
are about brain tumors, the more equipped they are to ask appropriate
questions and make informed decisions regarding treatments and care.
Through knowledge comes comfort and control.
The Foundation distributes, free of charge, both Adult and Pediatric
versions of the Brain Tumor Resource Handbook. These books provide
information on the physiology of the brain, diagnosis of brain tumors,
treatments and the return to a normal life.
The Foundation presents a yearly Information Day in October where
professionals, patients and their families gather to discuss the unique
problems facing a person with a brain tumor.
A program of formal support is available for persons with brain
tumors and their families. Brain tumor support groups for adults are
run by the Foundation on a monthly basis in many cities in southern
Ontario. The Foundation funds a Support Group Coordinator who is
available to offer support and direct guidance to anyone wishing to
start a support group in their area.
Publications Available from the Brain Tumor Foundation of Canada
The Brain Tumor Foundation of Canada office has books, other
publications, tapes and videos on brain tumors. Patients and their
families can borrow these. Visits to our office are always welcome.
North American Brain Tumor Coalition (NABTC)
The North American Brain Tumor Coalition is a network of brain
tumor organizations dedicated to increasing public awareness of the
dimensions and nature of brain tumors and of treatment options
available.
The Coalition hopes to stimulate and focus research that will
improve treatments and work towards a cure. The network of
organizations is dedicated to providing support for brain tumor
patients, their families and friends.
The Coalition shares information, materials and expertise in order
to enhance capabilities and/or reduce duplication. This helps member
organizations feel that they are at the forefront of what is happening
across the country.
It is hoped that each member organization will be able to amplify
its impact by taking on initiatives that no one organization would be
as effective doing on its own.
The Brain Tumor Foundation of Canada is proud to be a member of the
North American Brain Tumor Coalition.
Members of the North American Brain Tumor Coalition
- American Brain Tumor Association
2720 River Road
Des Plaines, IL 60018
(708) 827-9910
FAX: (708) 827-9918
- Brain Tumor Foundation for Children
Suite 9
2231 Perimeter Park Dr.
Atlanta, Georgia 30341
(404)
458-5554
FAX: (404)
458-5467
- Brain Tumor Foundation of Canada
111 Waterloo St., Suite 600
London, Ontario Canada
N6B 2M4
(519)
642-7755
(519)
FAX: 642-7192
- The Brain Tumor Society
60 Birmingham Parkway
Boston, MA 02135-1116
(617)
783-0340
FAX: (617)
783-9712
- Childrens Brain Tumor Foundation
35 Alpine Lane
Chappaqua, NY 10514
(914)
238-1656
FAX: (914)
238-1656
- National Brain Tumor Foundation
323 Geary St., Suite 510
San Francisco, CA 94102
(415)
284-0208
FAX: (415)
284-0209
- Preuss Foundation
Suite 340
201 Lomas Sante Fe Drive
Solana Beach, CA 92075
(619)
481-4406
- Ride for Kids Foundation
6350-B McDonough Dr.
Norcross, GA 30093
(404)
449-0789
FAX: (404)
449-9065